When facing a rare disease with limited knowledge in the medical field, we begin performing our own research. And it can be stressful searching for those knowledgeable doctors and services in your location. Our delegates are those who have already made this journey.
Under the direction of our medical advisory team, we are building a database with delegates in as many states and countries as possible. The delegates, listed below by state or country, have graciously accepted the responsibility of being a point of contact, as well as maintaining up-to-date contact information for the VAC (vascular anomalies centers) in their state or country. These VAC teams can be found here.
Not all states or countries have access to VAC teams, which is very unfortunate. Our global delegates are available to share how they have managed care in their area, either with or without a VAC team.
If you do not find your state or country listed below, perhaps you might consider becoming a global delegate. If interested, please contact president@cmtcalliance.org