Inspiration & Hope

Looking for Hope

As parents/caregivers of a child with a rare disease – physically visible anomaly or hidden anomaly – we often need someone, or something, to carry us through moments of despair – discouragement – disbelief – disappointment – and/or depression.

Please allow these videos to inspire within you, the strength and empowerment to pick yourself up and continue moving forward.

REMEMBER: We’re all a little rare; but, when we fall into mutual rareness…We call it a family!

Courtesy of Rare Disease Day 2015

Courtesy of Vascular Birthmarks Foundation